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The inadvertent disclosure of personal health information through peer-to-peer file sharing programs

机译:通过对等文件共享程序无意中泄露了个人健康信息

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摘要

Objective: There has been a consistent concern about the inadvertent disclosure of personal information through peer-to-peer file sharing applications, such as Limewire and Morpheus. Examples of personal health and financial information being exposed have been published. We wanted to estimate the extent to which personal health information (PHI) is being disclosed in this way, and compare that to the extent of disclosure of personal financial information (PFI). Design: After careful review and approval of our protocol by our institutional research ethics board, files were downloaded from peer-to-peer file sharing networks and manually analyzed for the presence of PHI and PFI. The geographic region of the IP addresses was determined, and classified as either USA or Canada. Measurement: We estimated the proportion of files that contain personal health and financial information for each region. We also estimated the proportion of search terms that return files with personal health and financial information. We ascertained and discuss the ethical issues related to this study. Results: Approximately 0.4% of Canadian IP addresses had PHI, as did 0.5% of US IP addresses. There was more disclosure of financial information, at 1.7% of Canadian IP addresses and 4.7% of US IP addresses. An analysis of search terms used in these file sharing networks showed that a small percentage of the terms would return PHI and PFI files (ie, there are people successfully searching for PFI and PHI on the peer-to-peer file sharing networks). Conclusion: There is a real risk of inadvertent disclosure of PHI through peer-to-peer file sharing networks, although the risk is not as large as for PFI. Anyone keeping PHI on their computers should avoid installing file sharing applications on their computers, or if they have to use such tools, actively manage the risks of inadvertent disclosure of their, their family's, their clients', or patients' PHI.
机译:目标:人们一直关注通过对等文件共享应用程序(例如Limewire和Morpheus)无意中泄露个人信息。已公开暴露个人健康和财务信息的示例。我们想要估计以这种方式公开的个人健康信息(PHI)的程度,并将其与个人财务信息(PFI)的公开程度进行比较。设计:经过机构研究道德委员会对协议的仔细审查和批准后,从对等文件共享网络下载了文件,并手动分析了PHI和PFI的存在。确定了IP地址的地理区域,并将其分类为美国或加拿大。评估:我们估计了每个区域包含个人健康和财务信息的文件所占的比例。我们还估计了返回包含个人健康和财务信息的文件的搜索词的比例。我们确定并讨论了与这项研究有关的道德问题。结果:大约0.4%的加拿大IP地址具有PHI,美国0.5%的IP地址也具有PHI。金融信息的披露更多,占加拿大IP地址的1.7%和美国IP地址的4.7%。对这些文件共享网络中使用的搜索词的分析表明,一小部分词会返回PHI和PFI文件(即,有些人在对等文件共享网络上成功搜索了PFI和PHI)。结论:存在通过对等文件共享网络无意间泄露PHI的真实风险,尽管该风险不像PFI那样大。将PHI保留在其计算机上的任何人都应避免在其计算机上安装文件共享应用程序,或者如果他们必须使用此类工具,则应积极管理无意中泄露其家人,客户或患者的PHI的风险。

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